Conception of Saviour Siblings: Ethical Perceptions of Selected Stakeholders in Malaysia


Kuek, Chee Ying and Gurmukh Singh, Sharon Kaur and Tey, Pek San (2021) Conception of Saviour Siblings: Ethical Perceptions of Selected Stakeholders in Malaysia. Asian Bioethics Review, 13. pp. 167-178. ISSN 1793-9453, 1793-8759

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The conception of saviour siblings using preimplantation genetic diagnosis coupled with human leukocyte antigen (HLA) typing or HLA typing alone is controversial and receives a wide divergence of legal responses among countries around the world. The resulting child conceived through this procedure is dubbed a ‘saviour sibling’ as the child can potentially act as a compatible donor for an elder ailing sibling who needs a haematopoietic stem cell transplantation. At present, the acceptability of this procedure in Malaysia is ambiguous as there is no specific statute governing assisted reproductive technology, and the guideline issued by the Malaysian Medical Council does not expressly address this issue. The ethical arguments relating to the conception of saviour siblings in the current literature are mainly thought to reflect a liberal viewpoint which is predominantly Western in nature. This paper seeks to explore the perception of selected key stakeholders on the acceptability of and ethical concerns related to this procedure in the Malaysian context. The findings indicate that stakeholders generally support the conception of saviour siblings and some of their concerns echo the Western viewpoint. Interestingly, many were highly anxious about its economic implication, which is rarely discussed in the current literature on saviour siblings.

Item Type: Article
Uncontrolled Keywords: Transplantation of organs, tissues, etc.
Subjects: K Law > KB1-4855 Religious law in general. Comparative religious law > KB400-4855 Interdisciplinary discussion of subjects > KB3098-3121.7 Medical legislation
Divisions: Faculty of Law (FOL)
Depositing User: Ms Nurul Iqtiani Ahmad
Date Deposited: 09 May 2021 14:18
Last Modified: 09 May 2021 14:18


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